I personally found great support and helpful advice visiting:
- Community support forum such as EaTef.org.
- Facebook groups like: "Bridging the Gap of EA/TEF" or "Esophageal Atresia/Tracheoesophageal Fistula"
- Check out Steve Wyles site: www.birth-defect.org, a non profit site for and by a TEF/TOF survivor born in 1962. Steve's goal is to raise awareness and money selling EA/TEF (OA/TOF) awareness badges worldwide. Steve also set up a site parents to share their stories at: www.tof-oa.com
- I started an EA/TEF support group on Babycenter.com
- I made a few EA/TEF awareness videos celebrating our children's accomplishments, here is the last one from 2014: https://www.youtube.com/watch?v=k7c6CR6HAes
There are amazing medical teams all over the world but Boston Children's offers a Esophageal Atresia Treatment Program.
Cincinnati's Children's hospital also has a EA/TEF center.
- Christyscourage.com is a non-profit helping EA/TEF families. Boston Children's leads the EA/TEF research in the US so it is also a great choice.
- Steve Wyles, a survivor born in 1962, sells EA/TEF (OA/TOF) awareness badges worldwide to raise awareness and money on his non profit website: www.steve-tofs.com