I designed "An EA/TEF (OA/TOF) Story Inside and Out" with children's empowerment in mind.
I carefully crafted it to avoid negative comparative vocabulary such as “abnormal vs. normal” or “weak vs. strong.” Our kids are nothing BUT strong. Their journey may not be typical but it only makes them, and their families, stronger.
On a kid to kid level, "An EA/TEF(OA/TOF) Story Inside Out" explains what Esophageal Atresia/Tracheoesophageal Fistula actually are, what it means in the character’s life, as well as how people can help.
Every EA/TEF(OA/TOF) child faces a unique set of complex challenges that can be delicate to convey, especially to children. At the beginning of each school year, I feel nervous about having to “explain” my daughter. I created this book as a safe interactive platform to ease into a conversation about what your child's conditions means for your particular family.
The proceeds from this book will go to Christyscourage.com and eatef.org to help them continue serving kids born with Esophageal Atresia/Tracheoesophageal Fistula.
This is truly a project from the heart, I spent a lot of time trying to make it as helpful as possible and I am thanking you for your support.
If you wonder how you could help our EA/TEF(OA/TOF) community, host your own "Sharing Time" at school, your child's birth month or January (official Awareness month) would be a great time to do that.
Also, please share this book on social media, leave a review on lulu.com or comment here. Think about gifting a copy to your local children’s hospital, doctor’s office, your child’s teacher or school , your local library or even your child’s cafeteria’s staff.